Wednesday, 23 January 2013

Confusion regarding life, heavy.


There are three pretty serious issues, in fact extremely serious issues, life or death issues which are in the headlines at the moment. Quite frankly they’re confusing me! Outwardly they appear to deal with the right to life and the protection of life and perhaps the role we and indeed the state get to play in decisions relating to life and it’s preservation.
On one hand there is a discussion regarding legislation to enable doctors carry out abortions where there is a risk to the life of the mother. In essence the decision makers are being asked to decide whether the mother or the unborn is prioritised. A huge component of this debate centres around the right to life and the belief that everyone has this right to life and that a greater value should not be placed on any life, then of course there’s the controversy regarding when life begins? It’s a difficult one to call, but one message which appears to be emerging is that life is precious and every effort should be made to preserve it.
Then we have the high court challenge being mounted by a women suffering from multiple sclerosis, (MS), who wishes to be given permission to have assistance to end her life should her disease progress to an advanced stage which renders her completely dependent on others. Once again a very sad situation. This lady wishes to have her voice heard while she still can and is faced with a dreadful prognosis. She may be fearful of being alive, but having no quality of life, of being rendered utterly powerless. She may have reached a state of acceptance of her condition and perhaps has given up on the prospect of a miracle cure. One is tempted to think that miracles do happen and to believe that “  where there’s life there’s hope” but is it fair to condemn an individual who doesn’t wish to be completely dependent to that degree of powerlessness in order to preserve our ideals?
Finally there is the controversy surrounding the new treatment for the Celtic version of Cystic Fibrosis (CF), Kalydeco. This treatment has been shown to drastically improve the lung function, weight and life expectancy of individuals with this life limiting condition. This will improve their quality of life and will buy valuable time during which the prospect of the discovery of a complete cure could be realised or an organ transplant could take place. It could also have a profound impact on the individuals quality of life. Yet the HSE seem to be undecided as to whether the life of the people with CF for whom this treatment may be suitable is worth the annual €230,000 that the drug would cost.

Therein lies my confusion on one hand we are debating issues around the preservation of life despite the consequences on the other hand there is a debate about the cost of the provision of a life preserving treatment for those who desperately wish to live.

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